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woman2woman fibroid support home | volunteering | sponsorship | suggest a link | thank you | testimonials | site map about us: our history | our team | our mission | our constitution fibroid clinic what is fibroid? how is it diagnosed? how 2 cope treatment options summary medical therapy hysteroscopic resection (tcrf) myomectomy hysterectomy endometrial ablation uterine artery embolisation myolysis & cryomyolysis mri guided fus ablation doppler guided uterine artery occlusion this site complies with the honcode standard for trustworthy health information: verify here . welcome british fibroid trust is set up for women with fibroids. we aim to: inform you what fibroids are and all available treatment options with the possible side effects so that you together with your gynaecologist can make informed choice on your suitable & appropriate treatment. be a venue/platform where women with fibroids can ease their anxiety by exchanging their experiences and discussing their concerns with each other. campaign for more research into the understanding of the cause(s), early detection and diagnosis and better treatments. british fibroid trust is a uk based voluntary not-for-profit organisation which is run by volunteers. we provide balanced information, independent of health care provider's interests. we do not promote private or commercial practices of gynaecologists or interventional radiologists. bft campaign for more research into fibroid petition signature counter petitioner's opinions target 10000 why is it that men just want to perform a hysterectomy when there are so many alternatives - i have just found another specialist who will do what i want - not what he wants [ d , torfaen] i feel very strongly about improving research and treatment of fibroids. i recently had a myomectomy and there were complictions which resulted in me losing 4.5 litres of blood (approx. 75%); this meant that i nearly died and had to have several blood transfusions. due to the surgeons having to work quikly, my right fallopian tube was damaged during the operation, which will affect my fertility. i have not yet had children and would like to in the near future, but my fertility has been compromised due to lack of funding, research etc. please move this towards the top of the health agenda. lavinia [ l.k , bristol] fibroids need to be top priority for research and male doctors need to be reeducated and to learn, listen and help regarding the pain and suffering that fibroids can cause. [ m.d.e.f , london] we, the undersigned, demand that the leaders of our government to put fibroids in the top of agenda for research fundings for better scheme for early detection and non-invasive treatments. [ c.h , abertillery] . [ v.b , amlwch] i believe this is an area which needs much more research. [ c , cupar] more research should be done [ f.w , ratho] enact legislation to require the medical establishment to disclose all options available to women for treating fibroids. provide sources for information to patients to learn more about each option including discussion boards on the internet wherein fellow-sufferers discuss their experiences in an open and candid forum. [ m.c , bowie, md usa] i saw a professional and all he wanted to do was a hysterectomy - i saw someone else and has a resectin a week ago and feel fab - i am back in work - some of these men are butchers! [ d.b , pontypool] there is definitely a need for more research and better training for gps, obgyns and consultant gynaes in this area. it took nearly 13 years from my first symptoms before i finaly found out i had a fibroid - i had started to pass clots and had slight back pain to start and my cycle became shorter and periods heavier over this period of time but was told that this was to be expected!i had uae in october 2007 and although because of the size of my fibroid it took a while for things to get better it is the best thing i have ever done and i am glad i spent the time to search out a good gynae and interventional radiologist - it took about 18 months and vistst o 5 gynaes and 4 hospitals [ s.m , haverfordwest] i feel strongly about improving research, care and training on fibroid. [ o.a , london] i have just cancelled my hysterectomy that was due to take place next week. my gynaecologist wanted to 'whip' out everything including my ovaries even though i have only just turned 43. i have heard of good results in the us where mifepriston or ru-486 has been used to treat fibroids. i want to take part in trials of this drug here as it sounds amazing. is any research going on in the uk on the effectiveness of this drug in treating fibroids? [ b.s , borehamwood] just because it's not cancer doesn't mean it's not worth treating. surely quality of life needs to move higher up the agenda. [ j.e , bingley] i certainly agree with the view that fibroids have not received as much attention as it should, considering its prevalence and effects on women. i will be happy to see that more is done towards research and education in the uk. [ u.e , chadwell st mary] i was diagnosed with fibroids over 10 years ago and had they been treated then i would not now be put in a position where i have to consider an hysterectomy at the age of 43! [ r.n , bradford] yes indeed more research! on solutions and reduction of risks. [ c.a , worcester] having recently undergone a myomectomy i know how miserable having a fibroid makes you and affects your day to day life. as much research as possible should bedone in to the cuases of this condition. [ c.d , leeds] every woman should be fully informed of all options . a young member of our family was fortunate to receive this in london. [ m..m , leeds] i fully support research into this condition and would like to add my name to the campaign to raise more awareness of the condition which causes much suffering to so many women. [ p.w , bosham, chichester, west sussex] more guidance needs to be given for women who wish to remain fertile and need treatment for their firbriods [ l , carshalton] i have resisted surgery in the hope that an alternative to the current options will come to light. i'm still waiting [ m.l.w , islington] living in the north of england the only option here to be completely free of fibroids is to have a total hysterctomy. i don't think anyone truly understands the misery of fibroids,both physically and mentally, unless they have suffered themselves. i have had some relief in the last 12 months with zoladex. however, there is only 1 gp in our practice who can administer this, and it is almost impossible to get an appointment with him! there should be more research,training,and treatments available to all women in this country. [ d.s , wigton] also need research into how effective current treatment is. from experience everyone is offered a mirena regardless of whether this is the best option. side effects are dismissed as trivial and women are supposed to put up with them as long as there is some decrease in bleeding [ h.a , emsworth] doctors need to be more sympathetic to how it affects womens quality of life, not one person has asked me this question, to which my reply would be i havent got one. more women need to keep going back to gp and complaining. [ t.n , portsmouth] my periods are a nightmare as i have 5 fibroids.im getting womb ablation in 2 weeks, this being an alternative to a hysterectomy.hope it works. [ s.o , cairneyhill] more reseach also needs to be done on why so many black women have fibriods. [ g.h , london] i have just been diagnosed with 3 different types of fibroids at the age of 40 after years of symptoms which have progressively worsened. i cant accept hysterectomy as the only complete solution when i am yet to have my first child. i dont want to compromise my fertility. more research needs to be made into other options to help sufferers make an educated choice. i live in dubai where most doctors are british or follow british medical practice. [ m.g , du

URL analysis for britishfibroidtrust.org.uk

http://www.britishfibroidtrust.org.uk/allpetitioners.php
http://www.britishfibroidtrust.org.uk/privacy.php
http://www.britishfibroidtrust.org.uk/volunteer.php
http://www.britishfibroidtrust.org.uk/index.php
http://www.britishfibroidtrust.org.uk/testimonials_list.php
http://www.britishfibroidtrust.org.uk/history.php
http://www.britishfibroidtrust.org.uk/sponsorship.php
http://www.britishfibroidtrust.org.uk/termsofuse.php
http://www.britishfibroidtrust.org.uk/contact.php
http://www.britishfibroidtrust.org.uk/book.php
http://www.britishfibroidtrust.org.uk/constitution.php
http://www.britishfibroidtrust.org.uk/membership.php
http://www.britishfibroidtrust.org.uk/mission.php
http://www.britishfibroidtrust.org.uk/thankyou.php
http://www.britishfibroidtrust.org.uk/team.php

Whois Information

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Domain name:
britishfibroidtrust.org.uk

Registrant:
Dr Nicki On

Registrant type:
UK Individual

Registrant's address:
36 Spray St
Woolwich
London
SE18 6AG
United Kingdom

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

Registrar:
123-Reg Limited t/a 123-reg [Tag = 123-REG]
URL: http://www.123-reg.co.uk

Relevant dates:
Registered on: 08-Oct-2008
Expiry date: 08-Oct-2018
Last updated: 01-Oct-2016

Registration status:
Registered until expiry date.

Name servers:
ns.123-reg.co.uk 212.67.202.2
ns2.123-reg.co.uk 62.138.132.21

WHOIS lookup made at 00:23:06 20-Jul-2017

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS britishfibroidtrust.org.uk

  PORT 43

  TYPE domain

OWNER

  ORGANIZATION Dr Nicki On

TYPE
UK Individual

ADDRESS
36 Spray St
Woolwich
London
SE18 6AG
United Kingdom
Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

DOMAIN

  SPONSOR 123-Reg Limited t/a 123-reg [Tag = 123-REG]

  CREATED 2008-10-08

  CHANGED 2016-10-01

STATUS
Registered until expiry date.

NSERVER

  NS.123-REG.CO.UK 212.67.202.2

  NS2.123-REG.CO.UK 62.138.132.21

  NAME britishfibroidtrust.org.uk

DISCLAIMER
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for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
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repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
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  REGISTERED yes

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